Diagnosed with a Brain Tumour in 2011. At the age of 22, with a 6 month old Son, and less than a week into marriage, my Husband Matthew underwent his first of 3 Crainiotomies in March 2012. With the Diagnosis of Dysembryoplastic neuroepithelial tumour (DNET), we were told seizures may continue, but you've likely had this tumour your entire life, and it will remain stable, live your life, you have nothing to worry about.
Fast forward a few months of daily focal seizures and we were sent to the Montreal Neurological Institute for a another opinion. Major studies done, surgery planned, back in January 2013 for a 9hr awake crainiotomy. Incredible hospital, incredible staff, fanominal surgeon and surgical team! January 23, 2013 the resident comes in, sts down and chats for a couple of hours and tells us all about the new diagnosis.
Once back in New Brunswick, we packed up, move across the country, and he undergoes 33 exposures of Radiation concurently with daily Temozolimide, followed by 6 months of higher dosed TMZ. After all of that, stable for 3.5 years. Until that little tumour started to grow again.
This month is 2 years of Chemo (3 different types) and the last 1.5 years of this he has been on TMZ. Now there are 3 spots, with growing concern.
We have full faith in our team, from our GP to our Pharmacist, to the Oncology team. But with Chemo not eliminating the tumours, the tumours imbeded in the motor strip, where do we go from here? Whats next?
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The current total amount raised for this city's Brain Tumour Walk is $43,073.90
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