Windsor Brain Tumour Walk 2019

Team Miranda
Team Miranda

Team Miranda

 

In 2016, Miranda tried really hard to make the Forest Glade Falcons Novice Softball Team. Softball is her passion and one of the best days of her life was when we looked up the website and read her name on the roster list. She was ecstatic! She loved the game, her teammates, all her coaches, EVERYTHING!!! After a few weeks into the season, a couple tournaments, her catching and hitting started to weaken and she was getting hit at bat! She was also getting hit with balls in gym class at school. So we made an optomotrist appt, we thought she needed glasses. She was a healthy, active 12 yr old. The optomitrist did a lot of tests and he found pressure behind her eyes. He made a referral to our family doctor to refer a neurologist. Our family doctor made the referral but also sent Miranda for a CT scan that led to an immediate MRI to being admitted in emergency where we found out Miranda has a brain tumour located behind her eyes.

On June 24, 2016, Miranda was rushed by ambulance from Windsor to London Children's Hospital where she was diagnosed with a Brain Tumour behind her eyes which has caused the loss of her peripheral vision, nystagmus(jumpy eye) and some other vision issues. It is also pressing against her Pituitary Gland causing problems and she has Hydrocephalus (fluid on the brain). She had brain surgery a few days later to place a shunt and have a biopsy done. The surgery lasted longer than expected but was successful! We spent almost 2 wks living at the Ronald McDonald House. After 6 long weeks we were so relieved to find out her tumour is beneign. She has a Pilocytic Astrocytoma. Unfortunately, the tumour is inoperable due to its location. Her optic nerves are embedded in it. After resting and healing all summer, an IV Port surgery was performed that didn't heal well. She was then to receive Chemotherapy of 70 weekly treatments to stop the tumour from growing. After completing 24 weekly treatments, we got the disappointing news that they needed to change the chemo regimen to a different combination of 2 stronger chemos and we have to start over for another 60+weeks. Miranda is allergic to one of the chemos and they conditioned her body to take it with including four iv drugs. After 85 weeks, Miranda will finally got to bang the gong on April 24, 2018! Finally! It’s been a long, tiring, dreadful road and we hope that everything continues to go well or stay stable with each and every 3 month MRI and ongoing tests for her tumour, Hydrocephalus, vision, hormones, heart and organs.

Miranda is an honour roll student at L’Essor High School and we couldn’t be more proud! She loves to learn! She LOVES school! As challenging as it with Miranda’s loss of eyesight, she is still trying to play houseleague softball and coaching! Miranda also enjoys art and is now taking up piano lessons! Her goal is to learn her song on the piano... “Don’t Stop Believin’”

It is a never-ending, tiring, sad, stressful painful and scary road. No child should ever suffer! We are very lucky and grateful to have such wonderful family and friends to help us along the way, support us and hold us up! We couldn't get through this without them!

Miranda and our family have decided to participate in the annual Brain Tumour Walk every year to help raise awareness and funds for The Brain Tumour Foundation of Canada. We want to help others like Miranda who are suffering from this horrible life-threatening illness. And so that children can continue to do the things that they love.

Please support "Team Miranda" on Saturday June 8th by walking with her and showing Miranda she will NEVER have to walk alone!!!

Thank you.

YOU GOT THIS MIRANDA!!! ... "DON'T STOP BELIEVIN'"!!!
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The current total amount raised for this city's Brain Tumour Walk is $65,549.87

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