On June 24, 2016, Miranda was rushed by ambulance from Windsor to London Children's Hospital where she was diagnosed with a Brain Tumour behind her eyes which has caused the loss of her peripheral vision, nystagmus(jumpy eye) and some other vision issues. It is also pressing against her Pituitary Gland causing problems and she has Hydrocephalus (fluid on the brain). She had brain surgery a few days later to place a shunt and have a biopsy done. The surgery lasted longer than expected but was successful! We spent almost 2 wks living at the Ronald McDonald House. After 6 long weeks we were so relieved to find out her tumour is beneign. She has a Pilocytic Astrocytoma. Unfortunately, the tumour is inoperable due to its location. Her optic nerves are embedded in it. After resting and healing all summer, an IV Port surgery was performed that didn't heal well. She was then to receive Chemotherapy of 70 weekly treatments to stop the tumour from growing. After completing 24 weekly treatments, we got the disappointing news that they needed to change the chemo regimen to a different combination of 2 stronger chemos and we have to start over for another 60+weeks. Miranda is allergic to one of the chemos and they conditioned her body to take it with including four iv drugs. After 85 weeks, Miranda will finally got to bang the gong on April 24, 2018! Finally! It’s been a long, tiring, dreadful road and we hope that everything continues to go well or stay stable with each and every 3 month MRI and ongoing tests for her tumour, Hydrocephalus, vision, hormones, heart and organs.
Miranda is an honour roll student at L’Essor High School and we couldn’t be more proud! She loves to learn! She LOVES school! As challenging as it with Miranda’s loss of eyesight, she is still trying to play houseleague softball and coaching! Miranda also enjoys art and is now taking up piano lessons! Her goal is to learn her song on the piano... “Don’t Stop Believin’”
Fast forward to 2020: unfortunately Miranda's tumour is slowly growing again and we are unsure of what lies ahead especially during the pandemic.
It is a never-ending, tiring, sad, stressful painful and scary road. No child should ever suffer! We are very lucky and grateful to have such wonderful family and friends to help us along the way, support us and hold us up! We couldn't get through this without them!
Please support "Team Miranda" on Saturday June 27th by walking and supporting her in the first ever virtual walk!
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