Welcome to My Personal Page
My brain tumor story dates back to my senior year of highschool in 2013. It was in this year that I started experiencing these spells in which my entire right side of my body would go into extreme, electric pain for a few minutes and then go numb. Since I had a history of anxiety, my doctor said it must be just an anxiety attack. These spells continued about a few times a month for years. No other help was sought since my family thought they were just anxiety. Then, May 19, 2016 happened.
On May 19th, when I was 19, I had a Grand Mall seizure at about 1:30am. After multiple scans, x-rays, and tests I was given the news that I had a menigioma tumor on the left frontal lobe of my brain. I had surgery the next day to remove the tumor and they were able to remove everything except a tiny piece that was on an artery. I was out of the hospital in a little over a week and was looking forward to radiation and recovery. Unfortunately, a month later I had to go back to the hospital. I ended up contracting an infection in my incision. Five minutes before being wheeled into surgery to fix my incision I was given the news that my skull was infected as well and would be removed. My craniotomy left me without a section of my skull from June until July.
I went back to get my prosthetic skull put in my head in mid July. A day after my cranioplasy I had to have another surgery do to drainage problems in my head. I had a spinal tap for about five days to fix this. (Unfortunately for me, this surgery didn't fully fix the issue and I continued to have drainage problems which led to part of my head being swollen like a baseball for about a year.) After having my four surgeries it was time to get my radiation! I had Gamma knife radiation in September of 2016.
After numerous MRI check ups, I still have scarring on my brain, but nothing is growing back! My story continues to have unexpected twists and turns every day. There is always something new popping up, but this experience has been one of the most humbling experiences of my life. I have learned so much about myself and so many other people. I know I'll be living with this for the rest of my life, but I know I am ready for whatever comes next. People are always saying "It's not brain surgery" to describe something that isn't hard to do. Well, as someone who has fought through four brain surgeries, nothing is impossible now. This fight is every day of every year for me now and I will not stop fighting unitl we find a cure. I look forward to walking beside all of my fellow survivors and fighters for the third year in a row. Thank you to everyone supporting me, from the bottom of my heart, It truly means the world.
National Brain Tumor Society is fiercely committed to finding a cure for brain tumors. They are aggressively driving strategic research and advocating for public policies that meet the critical needs of the brain tumor community. Your support ensures this important work will continue.
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