New York City Brain Tumor Walk

Team JohnO 23

I was diagnosed with a Cerebellar Astrocytoma in February of 2013.

After continuous follow-up appointments with Dr. Jeffrey Bruce of Columbia Presbyterian Hospital in NYC it was finally removed on June 4th, 2018.

I spent 27 days in Acute Care Rehabilitation at the Millstein Hospital in NYC. I had to relearn all of my basics: walking, sitting, eating, how to have a conversation, skills for memory, etc…

When I was finally discharged, I rolled out of the hospital in a wheel chair and needed support getting into my parent’s car. Despite being out of the hospital, rehabilitation had really just started. I began my outpatient rehabilitation at Kessler Institute in West Orange, New Jersey. I focused on balance, vision, coordination, and my fine motor skills.

I still needed more.

I found a vestibular specialist at NYU’s Rusk Institute and began the second part of my outpatient rehabilitation on 38th Street.

Physical Therapists, Occupational Therapists, Speech Therapists, Neuro Psychologists, Social Workers, Visual Therapists, and Vestibular Therapists - I’ve seen them all. Some weeks I can have up to 15 appointments.

I spend a lot of time in the woods of Pennsylvania, where my parents have a cabin. It’s isolated so I’m able to explore and be adventurous. Nature has been the best therapy.

My recovery has been long and exhausting but I’ve come so far from that day I wheeled out of Columbia Presbyterian. I’m out of the wheelchair: walking and working on the running.

I work hard every single day. There are no days off.

I keep a positive mindset because of the constant support from my family and friends.

I will be back stronger than ever.

I’m looking forward to celebrating my year of recovery with everyone at the walk on Randalls Island. I hope to see you all there!  It's a Good Day to have a Good Day......

JohnO

View More

National Brain Tumor Society is fiercely committed to finding a cure for brain tumors. They are aggressively driving strategic research and advocating for public policies that meet the critical needs of the brain tumor community. Your support ensures this important work will continue.

View More
http://events.braintumor.org/new-york-brain-tumor-walk/