NBTS Board of Directors Team -- Sacramento
I have been writing about what it is like living with brain cancer for 11 years. You may even be sick of hearing what I have to say. (But if you are not, feel free to check out https://thelizarmy.com).
National Brain Tumor Society (NBTS) is the nation's leading non-profit organization dedicated to advocacy and research for the brain tumor community. I have been volunteering for this organization since 2009 (just one year after my diagnosis).
NBTS makes it possible for all people who have been affected by brain tumors to have a voice and get involved... at whatever level they want. Some people like to attend 5Ks. Some people create their own fundraisers. Some people organize fancy galas that cost a lot of money.
Me, I like getting involved in public policy and research. Here is what I have been doing with NBTS over the last few years:
- 2009-2010: Patient/peer support
- 2012-current: Medical Advisory Board Member
- 2012-2014: Scientific Summit attendee in Boston, MA
- 2012-2015: California State Lead Advocate for Head to the Hill in Washington, DC - public policy
- 2013: Helped California become the 23rd state in the nation to pass an oral chemotherapy parity bill (with help from NBTS!)
- 2013: Recognized with the Community Leadership Award - for advocacy work in California
- 2016: I took a break to mourn the deaths of many people I know with brain cancer
- 2017: Joined the patient/family advisory council
- 2017-current: Attending Head to the Hill in Washington, DC - public policy
- 2017: Research Roundtable participant
- 2017-current: Serving on the Board of Directors
National Brain Tumor Society is fiercely committed to finding a cure for brain tumors. They are aggressively driving strategic research and advocating for public policies that meet the critical needs of the brain tumor community. Your support ensures this important work will continue.
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