Tighe Family: Benefiting Cure JM in honor of Spencer!
This holiday season, give children hope for a brighter future.
In September 2017, Spencer was diagnosed with Juvenile Dermatomyositis. He was 4 years old when we noticed symptoms. It became VERY difficult to do daily things like walk, sit on the ground, walk up steps or even roll over in his bed. We were thankful to get a diagnosis and to get him started on medicine that would relieve his pain. We continued treatment of Steroids and Methotrexate, eventually weaning off the steroids October of 2019!
Spring of 2020 he began to flare up. We had trouble getting it under control but by November 2020 his new regimen included monthly IVIG at Akron Children's, back on daily prednisone (low dose) and a weekly shot of Methotrexate AND Orencia done at home. He is still currently on this treatment and we are happy to report he is stronger than EVER right now! We are so thankful for the medicine that is making him feel so good but will be anxious to get him medicine free one day.
JDM is extremely rare effecting only 2/3 children out of a million and does not receive government funding for research to find a cure! As a parent that is a hard reality. It is only by your/our donations that we can support our doctors to help them research medicine with less side effects and possibly a cure! We are grateful for any big or small donation!
Thank you,
Jim, Becca, Lydia and Spencer
Your gift will be matched dollar-for-dollar by the Coffey Family Match!
- Click Donate Now to make an online gift.
- Checks can be made out to Cure JM and mailed to Cure JM, P.O. Box 45768, Baltimore, MD 21297.
Every gift helps children battling Juvenile Myositis. Juvenile Myositis turns a young life upside down. The immune system loses control and the body attacks itself. It can steal a child's ability to walk, play, or even swallow.
Right now, there are no FDA-approved treatments or a cure, but we can change that!
With your support, Cure JM is leading the way in groundbreaking JM research. There are now more new treatments in development for JM than ever before.
We are optimistic that several of the drugs we have in the research pipeline will improve the lives of our children:
·One drug is a possible steroid replacement—a new steroid with far fewer side effects.
·Another has already shown improvement in muscle strength and skin conditions in JM patients.
·Both of these drugs are on their way to clinical trials in JM patients.
This extraordinary progress is made possible by friends and family like you!
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