Make a Gift of Hope for my son Jon and all the kiddos suffering from JDM
Your support can give kids like Jon some hope for a cure this holiday season.
Your help is needed because, like many rare diseases, research is only made possible by friends and families.
Juvenile Myositis is a run-away immune response where the body attacks itself. It can steal a child's ability to walk, play, or even swallow.
In Jon’s case, he also has calcinosis cutis on his elbows. He has one large open wound which he has had since November 2021 and one spot on the other elbow, which just came through the skin about a month ago, and is getting bigger. These are extremely painful and often cause mobility issues.
*UPDATE: Jon’s last exam revealed another calcification…this one is on his neck. He will be undergoing monthly IVIG infusions to help his immune system fight and hopefully get the calcinosis cutis under control. He is scared but knows it’s the best chance he has to feel better.
The treatments used can sometimes be worse than the disease, they can cause debilitating life-long side effects such as vision loss, stunted growth and daily exhaustion.
With your help, we can continue to fund research…find better treatments and hopefully a cure one day.
Please, if you’re able, make a donation to help us reach our fundraising goal.
Every single dollar makes a difference.
Gifts will be matched dollar-for-dollar by the Coffey Family Match:
- Click donate now to make an online gift
- Checks can be made out to Cure JM and mailed to Cure JM, P.O. Box 45768, Baltimore, MD 21297, with our family's name in the memo
Your gift will be put right to work to:
• Pursue promising new treatments
• Advance four clinical trials
• Fund our largest-ever grant cycle, including investigating a new type of gene therapy
• Help kids get the best care possible
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