Walk Strong to Cure JM
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I'm participating in Walk Strong to Cure JM. All proceeds benefit Cure JM Foundation, a non-profit dedicated to finding a cure for Juvenile Myositis, a life-threatening disease which causes the body’s own immune system to attack healthy cells and tissues. It can affect virtually any system of the body, the heart, lungs, skin, muscles, and more. And there is no cure....YET!
I know, I know, I know, many of you just donated to help me on the ALC, but this too is truly important. Hear me out.
One year ago today, My friend Shannon and her husband Scott received a call confirming that their son Callaghan (Cal) had been diagnosed with JDM. For their family it has been a year of tests and doctors appointments and lots and lots of medications. Since his diagnosis, he has taken over 400 doses of oral steroids, along with various other daily medications, weekly chemo injections, and monthly day-long infusions of healthy immune cells and additional steroids. All of these medicines are critical for gaining strength and regaining his health. Due to his disease and the medications, he has developed lipodystrophy, insulin resistance, and pre-glaucoma. However, with support from CureJM and a network of doctors and specialists devoted to his care and the care of others with this disease, we are hopeful that Cal will continue to get stronger and that new treatment options will be discovered to lessen side effects and enhance his quality of life. Right now the goal for Cal is continued treatment and medication in hopes he may reach remission. Unfortunately, he’s not close to that yet.
For a moment if we could all imagine that this courageous young man was our child we would do everything we could to save his life, which is why I am joining Cal and his parents Scott and Shannon on team CalStrong For A Cure to raise money to fund research for better treatments and a cure!
Please consider joining me in this fight with a donation today. Any amount will be greatly appreciated.
Currently with great support from families and friends the Cure JM Foundation is able to fund research at 20 prestigious research institutions, helping advance JM research at an unprecedented pace!
Your gift now will keep that momentum going. Every donation goes straight to Cure JM, and since inception over 90% of all funds raised go directly to research.
Join us and fight against JM/JDM today!
With all my love,
John McNett
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