Join Us for Walk Strong 2023 - walking for James!
James is flaring. Again. It's not a big flare but, it also means that James isn't going off any meds anytime soon. So he will be starting college with 21 infusions and 4 procedures a year. That is 25 days lost to juvenile myositis before even considering how he might be feeling or any physician appointments. Nearly a month out of every year.
James does not remember a day where he wasn't fighting myositis. The mystery symptoms began 17 years ago.
This is why you see me fundraising. To a small (but growing) foundation like Cure JM, every dollar matters. Every family does their part. And I'm back every year, twice a year, because my kid is still sick.
James needs better medications. Medications that make it so he doesn't lose 25 days each year. Or even better, medications that throw him into remission.
We are celebrating Cure JM's 20-year anniversary by walking strong to Cure JM and hope you will join and support our team. Our Walk is on July 2nd at the RIO in Gaithersburg, Maryland. You can join us or your can walk from home.
Gifts will be matched by the Leetz Family Match.
Your gift will be put right to work to:
- Advance four clinical trials
- Help kids get the best care
- Fund our largest-ever grant cycle, including investigating a new type of gene therapy
Badges I've earned. Help me earn more!
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