Join us in supporting Cure JM research - Walking for Sophia!
We are celebrating Cure JM's 20-year anniversary by walking strong to Cure JM and hope you will support Team Sophia!
Sophia was diagnosed with (JDM) Juvenile dermatomyositis which is a rare disease. Primary symptoms include: skin rashes, weakening muscles which attacks the small blood vessels in the skin and muscles. Monthly, she visits Lurie Children's Hospital for an IVIG infusion by IV all day, which helps support her immune system as she takes immune suppressing drugs like Prednisone Steroids. We are down to 3ml of steroids per day gradually tapering down every month at the discretion of her rheumatologist. We hope she can achieve remission (be drug free with minimal symptoms) within 1-2 yrs. We remain cautious not to trigger her immune system, as a sunburn or getting a cold could set her back. Her disease affects one-in-a-million people and our hope is to give her an independent and fulfilling life in the future.
Please keep Sophia in your prayers.
Learn more at curejm.org
Consider donating to TEAM SOPHIA
And I will Match all donations
Gifts will also be matched by the Leetz Family Match.
Your gift will be put right to work to:
- Advance four clinical trials
- Help kids like Sophia get the best care
- Fund our largest-ever grant cycle, including investigating a new type of gene therapy
Thanks so much,
Tom & Mariana Schreiner and Tom and Lisa Schreiner
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