As we start Cure JM’s 20th year, I am so excited to announce that our New York Walk Strong to Cure JM is back!  You are invited to join our family to Walk Strong in honor of Addie on Saturday, June 3, 2023, at V.E. Macy Park at 10:00 a.m.  Let me know if you would like to join us! 

I am also so honored to serve as the Chair of Cure JM’s Board of Directors and I am grateful to you for making our extraordinary progress possible for kids like Addie.  I am filled with optimism for the future of children like Addie who are living with juvenile myositis as our doctors and researchers work tirelessly in the quest for better treatments and a cure for JM.

Twenty years ago, the outcomes for a child diagnosed with juvenile myositis were bleak.  The disease was like a cancer, spreading and rendering children immobile by attacking muscle and for many, the heart and lungs.  Thankfully, those days are largely behind us due to the work of Cure JM and the many pioneering researchers we supported in those earlier years.  Indeed, today we stand on the shoulders of those early visionaries who developed the life-saving treatments we have today.

And while life-saving, current treatments are imperfect and have complications and side effects of their own.  We still have much work ahead of us to develop better drugs and treatments and improve medical care and outcomes for our children. 

I would be honored if you would consider supporting our family’s goal to raise $25,000 in the Walk Strong New York to advance research in two areas to help kids like Addie.

With your support we will be able to identify and test, through clinical trials, newer and better drugs to treat JM.  We will also work to expand and support Cure JM’s new Clinical Care Network in New York and to ensure the highest quality care is available to JM children in all corners of the country.

We are grateful for your support.