Help us give juvenile dermatomyositis children hope for a brighter and healthier future.

• Every dollar makes a difference to improve treatments, care, and support for juvenile myositis, a life-threatening disease with no approved FDA protocols for treatment at this time. Current treatments save lives, but have horrible side-effects.  Together we can change that.  

  
  

  After an ER visit due to hives, troubled breathing, fever, inflammation in nail capillaries, grottons papules, severe muscle weakness causing inability to stand, persistent full body rash and more, on December 6, 2023 at 20 months old, Noah was diagnosed with juvenile dermatomyositis (JDM), causing his body to attack its own blood vessels, skin tissue and muscles.
  
  With no FDA approved treatment protocol and very little awareness on the condition, Noah was extremely blessed to have a quicker diagnosis than most and a treatment plan to follow.
  
  In less than a year’s time thanks to a handful of talented experts in various medical fields, Noah has been able to get off daily steroids and has a positive outlook of being able to taper off of his monthly Ig infusions and other medications in 2025.
  
  On October 6 from 9 AM - 1 PM at Rob Fleming Park, we’re inviting you to gather with us to celebrate his journey to better health, give thanks to all his supporters, and walk for more awareness so accurate and faster treatment can be given in the future. Enjoy activities, refreshments, awards and more.
  
  Prior to the walk, we’re encouraging any donations to Noah’s Walk Strong to Cure JM fundraiser as a show of support to him. 

  
  $25 - sends 5 teen JDMers to peer support 

  
  $45 - gives 3 books about JDM to a family

  
  $92 - supports 1 dose of a new medication for a JDMer in a clinical trial 

  
  $1,000 - sends JDM resources to 2 children’s hospitals for better awareness amongst the medical community 

  
  $1,500 - funds a Cure JM Day at a children’s hospital

  
  $2,000+ - supports advanced trials for new treatment developments that are less harsh on young children diagnosed with JDM
  
  If you can join us in person, please dress up in your best Berenstain Bears or farmer inspired outfit. Noah currently loves reading the Berenstain Bears books and watching the show, particularly the ones about pumpkins and Halloween.
  
  shhh it’s a secret — Noah and another toddler are anticipated to present their integrative medicine pediatric rheumatologist a ‘Hero Award’.
  
  Hope you all can make it, all family, friends, and pets are welcome!
  
  Thank you for being a part of Noah’s Harvest Crew! ‍
  

  
  

  Please make a donation to help us reach our goal. Your gift advances our fight against this disease.  

   

  Want to help me fundraise? Click "Join My Team!" 

  
  

  **If you wish to send a check, please make payable to Cure JM and mail to:

  Cure JM, P.O. Box 45768, Baltimore, MD 21297, with our family's name in the memo

  
  

  Thank you!