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Our daughter Madison was diagnosed with Juvenile Dermatomyositis when she was 7 years old. She was hospitalized for 2 months in the PICU at Cohen’s Children’s Medical Center and then admitted into Blythedale Children’s Hospital for 4 months to learn how to walk, talk, breath, and swallow all over again.
JM is a rare and life threatening autoimmune disease which can cause muscle pain, weakness, fatigue and can attack nearly all systems of the body, often causing a wide range of life-long medical complications including muscle weakness, joint pain, fatigue, rashes, fever, calcinosis, and even swallowing, lung, and digestive problems. During the last 10 years as a result of very aggressive treatments, high doses of steroids and monthly infusions, we have seen huge improvements in her health. Although the treatments are helping, there is no cure.
Maddy is a fighter and will not let this disease define her. She has worked hard to be where she is today and will continue to fight to get stronger and healthier every day. While Maddy’s disease has been life changing for my family, we are determined to find better treatments, and ultimately a cure for our daughter. Every dollar raised brings us closer to finding a cure.
Please help by making a donation, joining our Team, or walking with us. For more information please visit our website www.curejm.org
Your gift now will keep that momentum going. Every donation goes straight to Cure JM, and since inception over 90% of all funds raised go directly to research.
Join the team and fight against JM/JDM today!
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