We're Walking for Maddie and Olivia
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Dear Friends and Family,
My girls Maddie and Oliva are identical twins diagnosed with juvenile dermatomyositis.
Approximately 2 to 4 children in a million in the United States are diagnosed with JM each year. Its even more rare to have twins with the same disease. Last year my daughter Maddie first started having signs of this weird rash and muscle weakness. After seeing the pediatrician, 3 rheumatologists and 2 dermatologist we finally found the right team. About 6 weeks later Olivia presented with similar symptoms and we knew. After a year were still battling this disease.
It often gets misdiagnosed and requires lots of testing such as bloodwork, MRI, skin biopsy etc. Juvenile dermatomyositis (JDM) is a disease in children that causes skin rash (dermato) and muscle inflammation (myositis). The immune system loses control and the body attacks itself. It can steal a child’s ability to walk, play, or even swallow. Right now, there are no FDA-approved treatments and no cure.We know that Maddie and Olivia deserve better.
That’s why we are participating in Cure JM Foundation’s Walk Strong.
Our goal is to raise $2,500 for JM research and also to spread awareness to help other families!
Gifts are tax-deductible and will be matched dollar-for-dollar by the Leetz Family Match.
- Click 'donate now' to give
- Checks can be made out to Cure JM and mailed to Cure JM, P.O. Box 45768, Baltimore, MD 21297 with "Maddie & Olivia" in the memo.
Like many rare diseases, Juvenile Myositis research is only made possible by friends and family like you!
Your gift will be put right to work to:
- Advance four clinical trials
- Help kids get the best care
- Fund our largest-ever grant cycle, including investigating a new type of gene therapy
THANK YOU for giving the gift of hope to our beautiful girls.
Hope for better treatments. Hope for a brighter future. Hope for a cure.
With Gratitude,
The Reilly Family
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