The Honeymoon is Over, but the Fight and Struggles to be Normal Continue.  

When I first starting telling people that Mikayla was diagnosed with JDM, one of the first questions they asked was, will she get better.  4 years later, I'm happy to report today that she is indeed better.  However, do they understand what better means in the world of JDM?   

Mikayla takes over 10 medications a day.  Some to fight the disease, some to fight the side effects of such medications.  She  performs self injections on Friday and Sunday nights.  3 painful shots every weekend!  She is in the hospital every 3 weeks for an IVIG treatment.  Her next treatment will be number 100.  Think about that?  Yes, she is getting better, but in this case better simply means trying to become a normal kid and do normal kid stuff.  

Mikayla is on the soccer team and playing soccer for the first time in forever.  She plans to play basketball and softball as well.  However, we are remain on pins and needles hoping and praying that the JDM stays down, and a flare does not destroy her plans as it has in the past.  

Bottom line, our story is the exact reason why we need to keep asking for donations once a year.  No kids, including Mikayla, should have to go through what we have gone through in the last 4 years.  The physical and mental pain shared by all families with kids that have JDM is overwhelming and we need your help.  

But with support from friends and family like you, we’re getting closer to better treatments and a cure.

Please help us achieve our goal to help all families who are fighting the fight again JM. 

Join the team and fight against JM/JDM today!