We were founded in 2003 by a small group of parents and grandparents who wanted to change the future for children with a rare disease few had ever heard of—juvenile myositis.
With your support, we have become the global leader in funding juvenile myositis research, care, and support.
We have shortened the time to diagnosis, improved care, identified new treatment options, and improved quality of life and long-term outcomes.
Thanks to you, children today are doing better than ever before.
But we still have more work to do.
Our goal is to raise $750,000 by Giving Tuesday, November 28, to:
- Find new treatments with fewer side effects
- Help patients get the best care
- Educate doctors, parents, and patients on the latest in treatments and care
- Fund innovative new research, including investigating a new type of gene therapy and a groundbreaking new study to determine what is happening inside individual cells, to better target treatments