Welcome to My Personal Page
It's hard to believe I was diagnosed with Friedreich's Ataxia 10 years ago. To mark this bittersweet milestone, I want share a few things I've learned from my journey when this disease started when I was 15 years old.
1. I used to cry and think that boys would run away and not stick around after hearing my diagnosis. I now have an incredible husband. He's not afraid of FA, and I will remember these words for the rest of my life, along with that wonderful question: Will you marry me?
2. I used to be afraid of what others my think of me in public. I now know I am not judged by my illness and my peers treat me with kindness and respect.
3. I used to think I was never going to have children. Perhaps the biggest news: I have given birth to a beautiful baby boy.
I am fearfully and wonderfully made by God, and have a family that loves and supports me, no matter what the future holds.
Hi, my name is Emily Baudin and live just south of Dallas, TX. I was diagnosed with a debilitating, life shortening neuromuscular disease called Friedreich's Ataxia or FA for short, 10 years ago at the age of 15. In December of 2015, I got married and became a mother last year to a precious baby boy. Thankful doesn't even begin to describe my heart. I realize in order to create the life of my dreams, I must continue to push forward. It's hard to believe but life has become immeasurbly better because of this journey. Even though it appears to others that I am losing so much, they have no idea I'm gaining so much more. I often reflect on the following statement: If you have faith, then you have hope. And if you have hope, you have everything.
On March 24th, I will be riding my trike and pulling my son behind in a trailor. My husband will be riding his bike alongside us. We will be crossing the finish line together to cure FA. We will also be riding with local FA families, friends and cycling enthusiasts to redefine what is possible in FA research.
rideATAXIA was founded by Kyle Bryant, a young man with FA. Kyle redefined what was possible in his life when he took up recumbent cycling. He says after training for and completing his first century ride, "I can't even walk down the street, but I rode 100 miles in a day. After that the sky was the limit." Since 2007, rideATAXIA has raised over $5 million to fund FA research progress.
Join me in supporting the urgent pace of that research. Donate. Together we will cure FA!
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