RideAtaxia Fundraising Event
We will be participating in the RideAtaxia event in Philadelphia on Oct 14th in support of all the kids who have Friedreich’s Ataxia, my goal is to bring awareness of the need to donate to medical research, and find a cure so future kids do not have to struggle though this terrible condition. I will be riding a bike for 50 miles with other volunteers and friends to raise funds for FA research.
Friedreich’s ataxia (FA) is a rare , debilitating, life-shortening, degenerative neuro-muscular disorder. About one in 40,000 people of European , Middle East and Indian origin, have Friedreich's ataxia. FA Patients can have loss of vision, hearing, speech, and all motor functions. At later stages patients become completely disabled and are wheel chair bound. FARA is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to the pursuit of scientific research leading to treatments and a cure for Friedreich’s ataxia.
You can donate money directly to FARA on my RideAtaxia event page by scanning the QR code or by entering the URL below. You can also give checks payable to “FARA”. All donations are tax deductable
Visit http://www.curefa.org for more information on FA
Please watch this awareness video on what is FA
The Friedreich’s Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to the pursuit of scientific research leading to treatments and a cure for Friedreich’s ataxia in children.
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