TEAM TARA FOR FARA
Welcome to Team Tara for FARA!
As many of you know, my beautiful daughter Tara has a disease called Friedreich's Ataxia (FA), which is a form of Muscular Dystrophy. FA is a debilitating, life shortening, degenerative neuro-muscular disorder. Tara was diagnosed at the age of 15 and at that time was still walking and attending high school. Now, nine years later at the age of 24, she is in a wheelchair full time.
This disease is progressing every minute of every day and as a mother, it is truly the hardest thing I have ever had to watch. We need a treatment or a cure and we need one fast!
Hard to believe that on November 10th, this will be the 8th annual Ride Ataxia cycling event! From the first ride in 2011, the Orlando/Clermont ride has raised over $665,000 and we have increased the cyclist participation from 209 to over 400 participants.
The funds raised for this event will go directly to the Friedreich's Ataxia Research Alliance (FARA) to fight for a cure. We would be honored if you could come and ride in the event, volunteer, donate and spread the word to friends and family about this wonderful cause. I can never thank everyone enough who has been there since the first ride. We have had incredible support from the very beginning from our families and so many friends and for that I will always be thankful.
FARA is an organization that was founded in 1998 compiled of FA parents, patients and scientists who have never stopped searching for a treatment and/or a cure for this debilitating illness. Together this group of amazing individuals never stops searching for a treatment and/or a cure. In its decade and a half of their existence their efforts have led to major breakthroughs in the fight against FA. FARA is rated 4 stars through Charity Navigator which is the highest rating possible and is a nonprofit 501c3.
Without FARA and these amazing fundraisers there wouldn't be clinical trials available for my daughter. We are getting closer and closer every single day with the help of people such as yourselves. I know the day will come when their will be a cure or treatment for Tara and the others who suffer from Friedreich's Ataxia and we will have all of you to thank!
TOGETHER WE WILL CURE FA!
.... as Tara says,
"Ride with me, Raise Awareness with me, Find a Cure with me!"