rideATAXIA Chicago 2019

Team Emily


Hi-my name is Emily Young. On July 21, we're riding to cure Friedreich's ataxia (FA), a debilitating, life shortening neuromuscular disease. We'll ride with local FA families, friends and cycling enthusiasts to redefine what is possible in FA research. I was diagnosed with FA 11 years ago. Since then, many things in my life have changed. I struggle with fatigue, heart disease and loss of balance. I am 23 years old and working on my master's at the University of Illinois. I recently completed a clinical trial thru the University of Iowa.  Upon completion of the trial, I was given the opportunity to start an experimental drug for FA. Clinical trials for FA are possible because of events like rideAtaxia that continue to fund moving the research
forward.   I am inviting you to come out July 21st and participate in rideAtaxia. Be a part of the CURE. Donate! Together we WILL cure FA!
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