We are riding in support of our nephew, Jake (14), and niece, Claire (12), who live with the degenerative neuromuscular disease Friedreich’s Ataxia.
Our fundraising efforts with rideATAXIA will raise money for FA research.
While we know this is a challenging time, we hope that you can show support for this great cause by donating to Team Juip. We appreciate everyone’s support and contributions in the past, and we look to continue this effort in 2020.
Your support has helped research gain momentum towards finding a treatment and a cure for this rare disease. Exciting advances are being made in various areas, with potential for one or more treatments gaining FDA approval in the near future. Without your support, this progress would not be possible.
We invite you to join our team by donating and/or riding with us!
Please follow these steps:
1. Donate to the team or register as a member of Team Juip via the rideATAXIA website.
2. (optional) Connect with us via the free Strava app. Once you're registered, join the club "rideATAXIA Chicago Summer Challenge" to sync your rides with the team. This year, we’re riding together virtually. We’ll track the miles we ride at home in July, with a goal of collectively riding all the way around the Great Lakes.
3. (optional) Join the Facebook page "rideATAXIA Chicago Summer Challenge" for inspiration, motivation, and to keep track of our collective progress.
4. Ride with the knowledge you are helping to raise awareness and fund FA research!
We are excited to ride with you! Together we will cure FA!
FARA was formed in 1998 with the goal to Slow, Stop, Reverse, and Cure FA. Currently FARA has a research pipeline of over a dozen treatments in various stages of research. FARA is a 501(c)(3) non-profit organization and has been recognized as a 4 out of 4 star charity by Charity Navigator. All donations are tax deductible.