Newborn Screening Saves Lives!

Tell Your Senator to Support Federal Funds for Newborn Screening (NBS)

What is Newborn Screening (NBS)?

Each year approximately 4 million babies are born in the United States and nearly every one of those infants is screened for certain serious or life-threatening heritable disorders and medical conditions that can be treated. NBS isn’t just a test. It’s an interconnected public health system that relies on the coordinated activities of parents, health care providers, laboratories, and public health professionals.

How does Congress Support Newborn Screening?

The federal government supports state NBS programs by providing technical assistance, facilitating collaboration across states, and allocating financial resources to implement screening for new disorders and improve the quality of programs, among other activities. The Senate proposed $8.4 M to the Centers for Disease Control (CDC) newborn screening program that works with states to ensure babies are screened for diseases.  The Senate also proposed $13.9M for the Health Resources and Services Administration to support education and awareness of heritable diseases like SMA and newborn screening.  These programs are not adequately funded enough to support the current newborn screening programs which will soon include SMA.  More funds are needed now!

Take Action

Congress has yet to pass its FY2018 spending bills.  Tell the Senate to support funding for newborn screening.

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Send This Message

Tell Your Senator to Support Federal Funds for Newborn Screening (NBS)

Dear [Decision Maker],

My family is an SMA Family. SMA stands for Spinal Muscular Atrophy (SMA). SMA is the leading genetic cause of death for children under age two, and one in 50 Americans is a genetic carrier for SMA.

Federal funding for newborn screening continues to be low, yet this program which supports states works. Please support newborn screening programs by passing the FY 18 appropriations bills to include:
$8.4M for the CDC's Newborn Screening Quality Assurance Program
$13.9M for the HRSA Heritable Disorders Program

If we can screen babies for SMA, we can get them treatment fast--we can save lives!

Sincerely,

[Your Name]
[Your Address]
[City, State ZIP]
[Your Email]

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