Support the Build Back Better Act Investments in Medicaid Home and Community-based Services
Dear [Decision Maker],
As your constituent and a supporter of Cure SMA, the leading national organization that advocates for individuals with a neuromuscular disease known as spinal muscular atrophy (SMA), please support the Build Back Better Act provisions that invest in Medicaid home and community-based services (HCBS) and address the direct care workforce shortages.
Medicaid HCBS are essential services that assist individuals with disabilities, including those with SMA, with their routine daily activities, such as bathing, getting dressed, and eating.
Medicaid HCBS are cost-effective for states as an alternative to more costly nursing facility care. In addition, individuals with disabilities and older adults prefer to receive their long-term services and supports in their homes rather than in an institutional setting.
Unfortunately, there continues to be wait lists in accessing home care. In addition, many individuals who qualify for HCBS face challenges in finding and keeping direct care workers. While direct care jobs can be rewarding, studies, including one by the U.S. Government Accountability Office (GAO), have quantified the high turn-over rate, pointing to low pay, no or limited benefits, lack of career mobility, and high emotional and physical demands, including potential for on-the-job injuries.
The Build Back Better Act that was approved by the U.S. House of Representatives would help address the caregiving challenges faced by individuals with SMA and others by expanding access to HCBS through an increased federal Medicaid match and strengthening the direct care workforce that delivers these essential services through grants that can be used for competitive wages, benefits, and other supportive services.
These investments will help to ensure children and adults with SMA can access the in-home supports they need to maintain their health and independence. Please support these caregiving provisions when the U.S. Senate considers the Build Back Better Act legislation. Thank you for considering my views.
[City, State ZIP]