Cure SMA Action Center

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Latest Action Alerts


Protect Medicaid Home and Community-Based Services in Next COVID-19 LEGISLATION

Ask your Members of Congress to support emergency funding for Medicaid home and community-based services to ensure individuals with SMA can maintain their health and independence during the pandemic. Take Action ▸


Support the Advocacy Priorities of the SMA Community in the New 117th Congress!

Congress has reconvened for its 117th session. Help make sure new and returning Members of Congress are aware of spinal muscular atrophy (SMA) and the priorities of the SMA community. Take Action ▸


Encourage Non-Screening States to Act Today on Newborn Screening for SMA!

Cure SMA has set up state-specific Action Alerts to allow residents of non-screening states to send personalized letters to state leaders in support of SMA newborn screening. Take Action ▸


Action for SMA

There are multiple ways that you can be an SMA advocate, and one of the most effective ways involves working with elected officials. It is crucial that your elected officials—both at the local and federal levels—hear from you about issues that directly affect you. No one can tell your story the way you can!

To be an effective advocate, it’s important to understand the different levels of government along with the state and federal legislative processes. While you can engage in advocacy at any time, there are points in the legislative process when your argument will be the most impactful. Click below to learn more about the types of legislation.

FEDERAL ADVOCACY

STATE ADVOCACY


Advocacy Materials

Cure SMA has developed materials that you can use to prepare for and execute your advocacy efforts. Some materials may be customizable, while other are ready to print and go.