Cure SMA Action Center
Latest Action Alerts
Help People with SMA Access and Retain Personal Care Attendants and Other Home-Based Services
Congress is considering a proposal to expand access to personal care attendants (PCAs) and other in-home services for people with disabilities and older adults. Take Action ▸
Support Accessible Air Travel for Individuals with SMA!
Legislation was introduced in Congress to remove existing barriers and improve air travel accessibility for individuals with SMA and other disabilities. Ask your Members of Congress to cosponsor the Air Carrier Access Amendments Act! Take Action ▸
End the Marriage Penalty and Expand Benefits in SSI!
SSI is a federal program helps older adults (over age 65) and individuals with disabilities (including SMA) meet their basic living needs such as food, clothing, and shelter. Ask your Members of Congress to Cosponsor the Supplemental Security Income Restoration Act. Take Action ▸
Help Promote Employment Opportunities for Individuals with SMA!
Legislation supported by Cure SMA was introduced to promote employment for individuals with SMA and other disabilities. Ask your U.S. Senators to co-sponsor the Disability Employment Incentive Act. Take Action ▸
Expand Access to Assistive Technology Devices for Individuals with SMA!
Congress has an opportunity to expand essential services for people with disabilities by funding AT Act programs in the next federal budget. Ask your Members of Congress to support funding for Assistive Technology Act Programs. Take Action ▸
Support the Newborn Screening Saves Lives Reauthorization Act!
Ask your Members of Congress to Cosponsor the Newborn Screening Saves Lives Reauthorization Act that was introduced in the U.S. House of Representatives and the U.S. Senate. Take Action ▸
Encourage Non-Screening States to Act Today on Newborn Screening for SMA!
Cure SMA has set up state-specific Action Alerts to allow residents of non-screening states to send personalized letters to state leaders in support of SMA newborn screening. Take Action ▸
Action for SMA
There are multiple ways that you can be an SMA advocate, and one of the most effective ways involves working with elected officials. It is crucial that your elected officials—both at the local and federal levels—hear from you about issues that directly affect you. No one can tell your story the way you can!
To be an effective advocate, it’s important to understand the different levels of government along with the state and federal legislative processes. While you can engage in advocacy at any time, there are points in the legislative process when your argument will be the most impactful. Click below to learn more about the types of legislation.
Cure SMA has developed materials that you can use to prepare for and execute your advocacy efforts. Some materials may be customizable, while other are ready to print and go.