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Cosponsor the BRAIN Act to establish a Neuroscience Center of Excellence at the FDA

We are excited to join a large coalition of brain health-oriented organizations in announcing the introduction of the Bringing Regulatory Advances Into Neuroscience (BRAIN) Act, to establish a Neuroscience Center of Excellence (NCOE) at the Food and Drug Administration (FDA). A NCOE will spur innovation and investment in the study, creation, and regulation of brain-focused therapies by creating an environment designed to achieve patient-centered regulatory decision making, with the goal of bringing the right treatments and cures to patients who desperately need them.


We applaud Representatives Earl Blumenauer, Bill Pascrell, and Don Bacon for introducing a bill to help speed the delivery of safe and effective treatments for brain diseases, disorders, and injuries to individuals who need them. This legislation has the potential to create regulatory innovation to speed access to safe and effective treatments for patients with brain and central nervous system conditions, including Hydrocephalus.

Now is the time to contact your U.S. Representative and ask them to cosponsor the BRAIN Act. Add your voice and help us gain momentum for this priority legislation for the hydrocephalus community.

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Message

Dear [Decision Maker],

As a constituent impacted by hydrocephalus, a neurological condition that affects approximately 1 million Americans, I am writing to ask you to cosponsor the Bringing Regulatory Advances Into Neuroscience (BRAIN) Act (H.R. 5435) and to support similar provisions in the recently released bipartisan Cures 2.0 Act (H.R. 6000).

Hydrocephalus, an abnormal accumulation of cerebrospinal fluid in the brain, is a life-threatening condition that has no cure. Anyone can develop hydrocephalus at any time as a result of a traumatic brain injury, including premature babies, active duty service members, and veterans. Individuals can also be born with it, develop it as part of the aging process, or acquire it as a result of infections or brain tumors, among other causes. In fact, the overall population affected by hydrocephalus is growing. There are currently over 1,000,000 individuals living with hydrocephalus in the U.S.




Both the BRAIN Act as well as the provisions in Cures 2.0, will establish a Neuroscience Center of Excellence (NCOE) at the Food and Drug Administration (FDA). A NCOE will spur innovation and investment in the study, creation, and regulation of brain-focused therapies by creating an environment designed to optimize patient-centered regulatory decision making, with the goal of efficiently and swiftly bringing the right treatments and cures to patients who desperately need them, including those in the Hydrocephalus community. Please demonstrate your commitment to the hydrocephalus community in your district by cosponsoring the BRAIN Act (H.R. 5435) and supporting related provisions in Cures 2.0.

Sincerely,
[Your Name]
[Your Address]
[City, State ZIP]
[Your Email]