Support Direct Funding for Hydrocephalus Research

Congress is deciding right now how next year’s funding levels will be set, and the hydrocephalus community is beginning the process of requesting $5 million in direct funding for hydrocephalus research in this year’s government funding bill.

Now is the time to contact your legislators and ask them to support this commitment to hydrocephalus research. Let's make sure that Congress understands the value of this work and urge legislators to support a dedicated stream of funding in the future.

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Dear [Decision Maker],

As a constituent and someone who cares about people with hydrocephalus, I am asking you to consider adding a dedicated funding line of $5 Million for hydrocephalus research in the Congressionally Directed Medical Research Program (CDMRP), which is part of the Department of Defense Appropriation bill. Although hydrocephalus research is eligible to receive awards within a larger pool of funds, this condition, which impacts tens of thousands of service members, has not yet been given the resources it needs to fully investigate potential treatments and even a cure.

A large number of service men and women are at risk of developing hydrocephalus due to traumatic brain injury or other causes. Since 2000, more than 370,000 U.S. service members have sustained a traumatic brain injury, and it is estimated that 14% of those individuals--over 50,000 service members--could develop hydrocephalus as a result. This does not include the estimated 180,000 veterans who currently have Normal Pressure Hydrocephalus (NPH), a number that grows every year as the population ages. Unfortunately, many of these cases are probably undiagnosed or misdiagnosed with Alzheimer's, Parkinson's, or another related dementia.

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I urge you to support this needed dedicated funding for Hydrocephalus research in the CDMRP.

Sincerely,
[Your Name]
[Your Address]
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[Your Email]