Welcome to My Personal Page
Hi!
As you probably know Madelyn was diagnosed with hydrocephalus at our 20 week anatomy scan. Google (of course!) sent me down a terrifying rabbit hole of things to expect and possible outcomes. She had an ETV with CPC at 8 months old. We have been *incredibly* lucky with Maddie as things, so far, have been best case scenario. She is a walking, babbling, tough little sister!
Come walk with us - for our Maddie girl and all others dealing with the lifelong struggle hydrocephalus brings for many.
Can't join us in person? You can do it virtually!
Thank you for taking time to read this :)
Why do I WALK?
I believe no infant, child, or adult should live in constant fear of needing yet another brain surgery.
I believe that every person who joins the fight against hydrocephalus can have a lasting impact in the lives of every person diagnosed, today and in the future.
I believe that every dollar we raise for research will have a ripple effect and could be THE dollar that changes everything for a family affected by hydrocephalus.
As you may know, anyone at any age can develop hydrocephalus, a life-altering, life-threatening condition caused by an abnormal accumulation of cerebrospinal fluid (CSF), resulting in pressure on the brain. The most common treatment for this condition is brain surgery to implant a medical device called a shunt. Sadly, a shunt is not a cure, as device failures are very common and lead to multiple brain surgeries over a patient’s lifetime, in some cases 100 or more.
Hydrocephalus Association, Data Entry Division, 9249 S. Broadway, #200-845, Highlands Ranch, CO 80129
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