Welcome to Lauren's Birthday Fundraiser
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Why do I WALK?
I WALK on behalf of myself and all of those and their families living with this condition.
I struggled for over 20 years to get MD's to listen. I was relentless in advocating for myself. I ran around to every type of MD, got dozens of drugs pushed on me, and was given just about every wrong diagnosis possible. Finally in 2021, I was seen and heard. I'm 3 years post-op and coming out the other side. I'm incredibly grateful to my husband and my children, my extended family, and close friends for their unwavering support. There were many times I did not have the energy or the will to push on. I'm forever thankful for my team of MD's that are educated about the realities of hydrocephalus and truly care. Lastly, I found a community in HA that has both embraced me and taught me about the scope of this invisible disability.
How can I give back?
I believe that every person who joins the fight against hydrocephalus can have a lasting impact on the lives of every person diagnosed, today and in the future.
I believe that every dollar we raise for research will have a ripple effect and could be THE dollar that changes everything for an individual or family affected by hydrocephalus.
Anyone at any age can develop hydrocephalus, a life-altering, life-threatening condition caused by an abnormal accumulation of cerebrospinal fluid (CSF), resulting in pressure on the brain. The most common treatment for this condition is brain surgery to implant a medical device called a shunt. Sadly, a shunt is not a cure, as device failures are very common and lead to multiple brain surgeries over a patient’s lifetime, in some cases 100 or more.
NO infant, child, or adult should struggle to get properly diagnosed nor live in fear of another potential brain surgery once diagnosed.
Hydrocephalus Association, Data Entry Division, 9249 S. Broadway, #200-845, Highlands Ranch, CO 80129
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