Welcome to My WALK Fundraising Page
Why do I WALK?
I believe no infant, child, or adult should live in constant fear of needing yet another brain surgery.
I believe that every person who joins the fight against hydrocephalus can have a lasting impact in the lives of every person diagnosed, today and in the future.
I believe that every dollar we raise for research will have a ripple effect and could be THE dollar that changes everything for a family affected by hydrocephalus.
As you may know, anyone at any age can develop hydrocephalus, a life-altering, life-threatening condition caused by an abnormal accumulation of cerebrospinal fluid (CSF), resulting in pressure on the brain. The most common treatment for this condition is brain surgery to implant a medical device called a shunt. Sadly, a shunt is not a cure, as device failures are very common and lead to multiple brain surgeries over a patient’s lifetime, in some cases 100 or more.
I was diagnosed with Hydrocephalus in January 2021. I’ve had 8 brain surgeries in total with the last one in March 2023. It has been a slow recovery and I still suffer from double vision and balance issues, but overall I am doing amazing thank God!! I know I would not be alive and walking if it wasn’t for the neurosurgeons and doctors that cared for me and diagnosed me with Hydrocephalus. I’m so thankful for my family and friends that have stood by me through this crazy journey in my life!
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