Welcome to My WALK Fundraising Page
Why do I WALK?
As you all know JJ was born with Hydrocephalus. He was born at 27 weeks and underwent daily taps to reduce the fluid in his head. They did this for about a month before they were able to place the shunt to assist with the fluid. We were told every negative outcome possible, most likely because it really is unknown until the child grows on how severe the outcome will be. JJ has been blessed and really is our miracle baby. He has gone through 5 revisions to date. I would love if a cure or at least something with better odds would be invented for everyone dealing with hydrocephalus. We thank everyone who has been on JJ's side since day one. We know it takes a village, and he definitely has one.
I believe no infant, child, or adult should live in constant fear of needing yet another brain surgery.
I believe that every person who joins the fight against hydrocephalus can have a lasting impact in the lives of every person diagnosed, today and in the future.
I believe that every dollar we raise for research will have a ripple effect and could be THE dollar that changes everything for a family affected by hydrocephalus.
As you may know, anyone at any age can develop hydrocephalus, a life-altering, life-threatening condition caused by an abnormal accumulation of cerebrospinal fluid (CSF), resulting in pressure on the brain. The most common treatment for this condition is brain surgery to implant a medical device called a shunt. Sadly, a shunt is not a cure, as device failures are very common and lead to multiple brain surgeries over a patient’s lifetime, in some cases 100 or more.
Have a donation you'd like to mail in? Click on the link to print the offline donation form and mail to: Hydrocephalus Association- Data Entry Div, 9249 S. Broadway, #200-845, Highlands Ranch, CO 80129
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