Welcome to The Sebastionellis' HA WALK Page
Join me as I WALK to End Hydrocephalus! As you may know, hydrocephalus is a life altering, life threatening condition, caused by an abnormal accumulation of cerebral spinal fluid, resulting in pressure on the brain. The most common treatment for this condition is brain surgery to implant a medical device called a shunt, which has a 50% failure rate in children within the first two years. A shunt is not a cure as many patients endure multiple brain surgeries throughout their lifetime, some more than 100. Imagine life knowing that the next brain surgery lurks around the corner because your shunt could fail at any moment. No one should have to live like this. This is WHY I WALK and also why I need your support. Please donate and help me reach my goal. Your donation is greatly appreciated and will go far in helping us find a cure and improve the lives of people living with hydrocephalus.
Our family is walking in memory of our boys Hudson & Logan Sebastionelli, both of whom were diagnosed with congenital hydrocephalus and passed away before birth. Help us provide support to families who are dealing with this condition everyday.
Thank you for your support!
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