Imagine being 15 years old and having had more brain surgeries than birthdays and know that it is likely that you will have more. This is the scary reality for my grandson William. Surgery #19 could be happening soon. 

There has got to be an easier and better way and that is why we do this walk! Finding a cure, finding less intrusive treatments, and raising awareness. 

Please consider donating for William and others like him.

Why do I WALK?

I believe no infant, child, or adult should live in constant fear of needing yet another brain surgery.

I believe that every person who joins the fight against hydrocephalus can have a lasting impact in the lives of every person diagnosed, today and in the future.

I believe that every dollar we raise for research will have a ripple effect and could be THE dollar that changes everything for a family affected by hydrocephalus.

As you may know, anyone at any age can develop hydrocephalus, a life-altering, life-threatening condition caused by an abnormal accumulation of cerebrospinal fluid (CSF), resulting in pressure on the brain. The most common treatment for this condition is brain surgery to implant a medical device called a shunt. Sadly, a shunt is not a cure, as device failures are very common and lead to multiple brain surgeries over a patient’s lifetime, in some cases 100 or more.