WALK with me to honor Carmen!
I am walking, as I did last year, in memory of my daughter Carmen. Hydrocephalus has no cure, only treatments. There is no time like the present for all of us to join together and Walk in support of the Hydrocephalus Association’s research to find a CURE. This will not change what happened to Carmen and our family, but this will give us the opportunity to keep other families from suffering the loss and heartache that we have endured. So please, support me as I WALK to End Hydrocephalus!
For those who don’t know, hydrocephalus is a life altering, life threatening condition, caused by an abnormal accumulation of cerebrospinal fluid, resulting in pressure on the brain. The most common treatment for this condition is brain surgery to implant a medical device called a shunt, which has a 50% failure rate in children within the first two years.
A shunt is not a cure, as many patients endure multiple brain surgeries, throughout their lifetime, some more than 100. We were fortunate that Carmen only had to have 3 such surgeries in her 7 plus years of life. Imagine life knowing that the next brain surgery lurks around the corner because your shunt could fail at any moment. It’s heartbreaking. No one should have to live like this.
This is exactly WHY I WALK and also why I need your support. Please donate and help me reach my goal. Every donation, no matter the size, has the chance to make a tremendous impact on someone’s life. Your donation is greatly appreciated and will go far in helping us find a cure and improve the lives of people living with hydrocephalus.
Co-founder, Carmen’s Angel Fund
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