Why do I WALK?

I believe no infant, child, TEEN, or adult should live in constant fear of needing yet another brain surgery.

I believe that every person who joins the fight against hydrocephalus can have a lasting impact in the lives of every person diagnosed, today and in the future.

I believe that every dollar we raise for research will have a ripple effect and could be THE dollar that changes everything for a family affected by hydrocephalus.

By being personally impacted by hydrocephalus, it only makes it that much more important for me. 

As you may know, anyone at any age (16 years old for me!) can develop hydrocephalus, a life-altering, life-threatening condition caused by an abnormal accumulation of cerebrospinal fluid (CSF), resulting in pressure on the brain. The most common treatment for this condition is brain surgery to implant a medical device called a shunt, which is what I currently live with. Sadly, a shunt is not a cure, as device failures are very common and lead to multiple brain surgeries over a patient’s lifetime, in some cases 100 or more.