Ty'Meirs Miracles N Motion
Ten fingers. Ten toes. A very healthy bouncing baby boy! That is what we all pray for but thank God for unanswered prayers! This is Ty’Meirs story.
Around 20 weeks in my pregnancy I started having complications. Frequent trips to the Labor & Delivery department had me getting continuous steroid shots and eventually led to complete bed rest. All during this time, no one could tell me WHY I was suddenly thrust into the world of premature labor. This was new to me as I had no complications during pregnancy with my daughter.
At approximately 30 weeks weeks I felt funny. I spoke with my mom and she advised me to go back to Labor & Delivery. Once there they performed the normal, at least the “normal” for me. Ultrasounds, IVs etc etc. BUT, this time was very different. In walks a high-risk nurse and she performs yet another ultrasound. Now I am SCARED! I ask her what is wrong and she tells me that there appears to be blood on his brain and his head is measuring way too big for his gestational age. More and more doctors. More and more tests!!! NOW, I am hysterical!!
Later that evening my OB comes and confirms everything I have already been told. She makes a referral to a high-risk OB. Those appointments start immediately! And now I have a new OB AND I have to see a Neurologist at Nationwide Children’s. Everything happened so quickly! The Neurologist does the MRI and we have a family meeting to discuss the results.
These words are still a little blurry from the meeting, “The baby appears to have very little brain matter. It looks as if his head is filled with fluid. Without a fully functioning brain he will have a very diminished quality of life. He will never take food orally. He will never walk. He will most certainly require assistance for his entire life. He will be severely delayed, possibly deaf AND blind.” WHO could hold back tears from that diagnosis! Thank God my mom and Tone’s mom (Ty’Meir’s father) were there with us!
Ty’Meir was born on January 11, 2017 via Cesarean Section due to the size of his head. He was the most beautiful human that I have ever saw, with the exception of my daughter. He didn’t look like the monster the doctors described! HE WAS AND STILL IS PERFECT!
YES! He was born with Severe Hydrocephalus AND Hisrschsprung’s Disease. YES! He is legally blind. YES he has Cerebral Palsy. YES HE HAS L1 Cam syndrome, YES he has epilepsy YES he has scoliosis AND YES; he is now 7 years old and has had multiple surgeries! HE IS A FIGHTER! He takes nutrition orally and now through a g tube . He HEARS! He is starting to try and turn over and guess what, he even has conversations with his big sister, Londyn; baby talk of course, but all the same it’s a beautiful sound!!!
YES! We have tons of doctors appointments , Tons of therapy appointments EVERY WEEK!
Ty’Meir has shown us what it really means to love UNCONDITIONALLY! How to be strong in the face of adversity! How to PUSH through in spite of! Ty’Meir is OUR BLESSING….OUR MIRACLE!! We have Faith that he WILL do ALL that God has called him to do!
Ty’Meir has a VERY STRONG village and the people that are supposed to be a part of his life are! We have a ways to go but with God, ALL THINGS ARE POSSIBLE!
Thank you for sharing in Ty’Meir’s Journey! Pray for us as we pray for you!
Follow his blog Ty’Meirs Miracle In Motion
Why do I WALK?
I believe no infant, child, or adult should live in constant fear of needing yet another brain surgery.
I believe that every person who joins the fight against hydrocephalus can have a lasting impact in the lives of every person diagnosed, today and in the future.
I believe that every dollar we raise for research will have a ripple effect and could be THE dollar that changes everything for a family affected by hydrocephalus.
As you may know, anyone at any age can develop hydrocephalus, a life-altering, life-threatening condition caused by an abnormal accumulation of cerebrospinal fluid (CSF), resulting in pressure on the brain. The most common treatment for this condition is brain surgery to implant a medical device called a shunt. Sadly, a shunt is not a cure, as device failures are very common and lead to multiple brain surgeries over a patient’s lifetime, in some cases 100 or more.
Have a donation you'd like to mail in? Click on the link to print the offline donation form and mail to: Hydrocephalus Association- Data Entry Div, 9249 S. Broadway, #200-845, Highlands Ranch, CO 80129
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