September is the Hydrocephalus Association aware month. Our grandson Grayson was diagnosed at 3 weeks. He has undergone a shunt placement and one revision. Shunts are not a cure but manage the cerebrospinal fluid. We are walking to help make a difference for all the hydrocephalus warriors. If you want to join Team Grayson and walk, donate or even volunteer at the walk it would mean the world to all.

Why do I WALK?

I believe no infant, child, or adult should live in constant fear of needing yet another brain surgery.

I believe that every person who joins the fight against hydrocephalus can have a lasting impact in the lives of every person diagnosed, today and in the future.

I believe that every dollar we raise for research will have a ripple effect and could be THE dollar that changes everything for a family affected by hydrocephalus.

As you may know, anyone at any age can develop hydrocephalus, a life-altering, life-threatening condition caused by an abnormal accumulation of cerebrospinal fluid (CSF), resulting in pressure on the brain. The most common treatment for this condition is brain surgery to implant a medical device called a shunt. Sadly, a shunt is not a cure, as device failures are very common and lead to multiple brain surgeries over a patient’s lifetime, in some cases 100 or more.