Welcome to My Personal WALK Page
Why do I WALK?
In July 2023 my mom was diagnosed with Normal Pressure Hydrocephalus (NPH). This condition that most of us had never heard of was impacting our family in a big way. After months of searching for answers we finally got a proper diagnosis. Fortunately, my mom underwent VP shunt placement a few months later and today she is doing better than ever. Throughout this journey we have learned that NPH often goes undiagnosed or misdiagnosed. For my mom, this was true for over a year. We are hopeful that our experience can bring awareness to NPH and make this condition more well known and understood.
I believe no infant, child, or adult should live in constant fear of needing yet another brain surgery.
I believe that every person who joins the fight against hydrocephalus can have a lasting impact in the lives of every person diagnosed, today and in the future.
I believe that every dollar we raise for research will have a ripple effect and could be THE dollar that changes everything for a family affected by hydrocephalus.
As you may know, anyone at any age can develop hydrocephalus, a life-altering, life-threatening condition caused by an abnormal accumulation of cerebrospinal fluid (CSF), resulting in pressure on the brain. The most common treatment for this condition is brain surgery to implant a medical device called a shunt. Sadly, a shunt is not a cure, as device failures are very common and lead to multiple brain surgeries over a patient’s lifetime, in some cases 100 or more.
Hydrocephalus Association, Data Entry Division, 9249 S. Broadway, #200-845, Highlands Ranch, CO 80129
If you think this page contains objectionable content, please inform the system administrator.