Welcome To Team Pearl Girl!
As some of you know, our daughter, Pearl, has a brain condition called Hydrocephalus. Hydrocephalus is something Pearl will have for her entire life. Please join us in walking or donating towards furthering an understanding and research about this condition.
**WALK WILL BE HELD 9/28/24 IN CORALVILLE, IA AT S.T. MORRISON PARK. CONTACT US DIRECTLY FOR MORE INFORMATION.**
Why do I WALK?
I believe no infant, child, or adult should live in constant fear of needing yet another brain surgery.
I believe that every person who joins the fight against hydrocephalus can have a lasting impact in the lives of every person diagnosed, today and in the future.
I believe that every dollar we raise for research will have a ripple effect and could be THE dollar that changes everything for a family affected by hydrocephalus.
As you may know, anyone at any age can develop hydrocephalus, a life-altering, life-threatening condition caused by an abnormal accumulation of cerebrospinal fluid (CSF), resulting in pressure on the brain. The most common treatment for this condition is brain surgery to implant a medical device called a shunt. Sadly, a shunt is not a cure, as device failures are very common and lead to multiple brain surgeries over a patient’s lifetime, in some cases 100 or more.
Hydrocephalus Association, Data Entry Division, 9249 S. Broadway, #200-845, Highlands Ranch, CO 80129
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