I'm Flowin' with Noah... come join me!
A little about us:
Hi! Welcome to my page!
My name is Sylvia and I am a proud auntie to our little warrior, Noah. At 2 months old.. yes, you read that right, 2 months old.. Noah had to undergo his first brain surgery. To say our family was terrified is an understatement. We never underestimated the strength of this little dude and between family, friends and the power of prayer, everything turned out to be alright! Noah made it out just fine and is striving! He is currently in therapy; he’s meeting his goals and getting stronger by the day. Having this surgery, was not a simple cure. (As much as I wish I could say it was). In fact, he may end up needing more. Living with hydrocephalus is life long. Anything can change in the blink of an eye. We are walking to raise awareness and hope for better treatments and potentially even a cure!
Why do I WALK?
I believe no infant, child, or adult should live in constant fear of needing yet another brain surgery.
I believe that every person who joins the fight against hydrocephalus can have a lasting impact in the lives of every person diagnosed, today and in the future.
I believe that every dollar we raise for research will have a ripple effect and could be THE dollar that changes everything for a family affected by hydrocephalus.
What you may not know is: anyone at any age can develop hydrocephalus, a life-altering, life-threatening condition caused by an abnormal accumulation of cerebrospinal fluid (CSF), resulting in pressure on the brain. The most common treatment for this condition is brain surgery to implant a medical device called a shunt. Sadly, a shunt is not a cure, as device failures are very common and lead to multiple brain surgeries over a patient’s lifetime, in some cases 100 or more.
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