#ShelbyStrong
Why do I WALK?
I walk in support of my 2 year old granddaughter, Shelby. Shelby was born with hydrocephalus, and has had 8 brain surgeries. She has had multiple malfunctions with her shunt. And the last one was the worst. She had a stroke, and almost didn't make it through. But she's strong-willed and surprised even the best of doctors at Children's hospital in Omaha, NE. She's currently in the Madonna Rehabilitation Center, where she's getting 3-4 hours of physical, speech, and occupational therapy daily. She has to relearn how to hold her head up, wave, sit up, etc. We all have high hopes, that overtime, she will fully recover.
But I walk, not just to support Shelby, but for anyone else who also has hydrocephalus.
I believe no infant, child, or adult should live in constant fear of needing yet another brain surgery.
I believe that every person who joins the fight against hydrocephalus can have a lasting impact in the lives of every person diagnosed, today and in the future.
I believe that every dollar we raise for research will have a ripple effect and could be THE dollar that changes everything for a family affected by hydrocephalus.
As you may know, anyone at any age can develop hydrocephalus, a life-altering, life-threatening condition caused by an abnormal accumulation of cerebrospinal fluid (CSF), resulting in pressure on the brain. The most common treatment for this condition is brain surgery to implant a medical device called a shunt. Sadly, a shunt is not a cure, as device failures are very common and lead to multiple brain surgeries over a patient’s lifetime, in some cases 100 or more.
Hydrocephalus Association, Data Entry Division, 9249 S. Broadway, #200-845, Highlands Ranch, CO 80129
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