Welcome to Dayna Simma's Walk to End Hydrocephalus
Why do I WALK?
Our granddaughter, Eliza, was diagnosed with hydrocephalus while in utero. As you can imagine, this resulted in a very stressful pregnancy, delivery, and newborn stage. Eliza has already had 2 brain surgeries in her first year of life. While she is doing very well, the future is unsure.
I believe no infant, child, or adult should live in constant fear of needing yet another brain surgery.
I believe that every person who joins the fight against hydrocephalus can have a lasting impact in the lives of every person diagnosed, today and in the future.
I believe that every dollar we raise for research will have a ripple effect and could be THE dollar that changes everything for a family affected by hydrocephalus.
As you may know, anyone at any age can develop hydrocephalus, a life-altering, life-threatening condition caused by an abnormal accumulation of cerebrospinal fluid (CSF), resulting in pressure on the brain. The most common treatment for this condition is brain surgery to implant a medical device called a shunt. Sadly, a shunt is not a cure, as device failures are very common and lead to multiple brain surgeries over a patient’s lifetime, in some cases 100 or more.
Hydrocephalus Association
When you do this, Team Eliza gets credit for your donation!
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