Welcome to our Team Page!

This is OUR story!

If there's one thing in my life that I will never forget, its the day that we met with our doctors and were given such a grim diagnosis for Grayson. The word "termination" rang through our ears as the doctors said that it would be the best option for Grayson, that he wouldn't have a very good life at all, if he made it past birth. We cried the entire way home and I cried all day that day.

For the 9 weeks after we were given this news, we prayed, we cried, we pleaded, and we waited anxiously. Grayson was given the diagnosis of hydrocephalus. At 24 hours old, he had his first brain surgery. The neurosurgeon drained 14 ounces of fluid off of Grayson's brain that day. He spent a total of 64 days in the NICU over an hour away from our house. At 2 1/2 months old, he had his shunt placed. And not even a year later, he had two shunt revisions less than a week apart from each other. I can't even count the number of ER visits we've had in the last two years. Some related to hydrocephalus, some due to other illnesses. Two of them within the last 4 days due to seizures that we can't get the answers to.

This is what hydrocephalus is. It's not just a diagnosis. It's anxiety every time your child gets sick. It's worry every time there's something new going on. It's the love that you have for your child because of how strong they are fighting and how determined they are to do things other said they wouldn't. And, it's the strength of yourself being a parent, having to constantly advocate for your child when you KNOW something is wrong and the doctors are fighting you saying everything is normal.

This. This is why I do what I do. This is why I help host the Houston WALK to End Hydrocephalus. This is why I fundraise. This is why I raise awareness and get out of my comfort zone to talk to other families who are going through the same emotions I went through two years ago. Because there has to be something else to help anyone suffering with hydrocephalus that is NOT brain surgery.

I may never be able to tell my child that this was his last brain surgery but, I will always be able to tell my child that I will fight to get him the care he needs!

Will you help make a difference? When you register to walk or donate, you are supporting the Hydrocephalus Association. But more importantly, you are supporting over 1 million people in the U.S. living with hydrocephalus. You can give each of them hope for better treatments and a cure.

Join our team in person, join virtually and donate to help us reach our goal. Your donation is greatly appreciated and will go far in helping us find a cure and improve the lives of people living with hydrocephalus.

Thank you!