Western NY WALK to End Hydrocephalus

Jaxon's Journey

Welcome to Our Team Page!

Please join our team, Jaxon's Journey and WALK with us to End Hydrocephalus!  This event is very dear to our hearts as we are walking on behalf of our beautiful little guy Jaxon who is living with hydrocephalus. We are in constant fear that his shunt could fail at any moment. As you may know, hydrocephalus is a life altering, life threatening condition, caused by an abnormal accumulation of cerebral spinal fluid, resulting in pressure on the brain. The most common treatment for this condition is brain surgery to implant a medical device called a shunt, which has a 50% failure rate in children within the first two years. Our little warrior is blessed to have had no shunt related issues since his surgery in December 2017. Unfortunely for many that is not the case.  A shunt is not a cure as its consistent failures lead to multiple brain surgeries over a patient’s lifetime, in some cases 100 or more.   This is unacceptable and this is WHY WE WALK. Please join our team, donate and help us reach our goal. Your donation is greatly appreciated and will go far in helping us find a cure and improve the lives of people living with hydrocephalus.  Thank you for your continued love and support.

                  Love Jessica & Jaxon

 

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