2020 Portland WALK to End Hydrocephalus

Stay In the Arena

Dear Friends & Family,

As most of you know, I was diagnosed with a condition called hydrocephalus at the age of 17. Hydrocephalus is an abnormal accumulation of cerebral spinal fluid in the brain, and can be caused by many different things (in my case, I have a strutural blockage in my brain that causes the build up). Over 1mil patients in the US alone are suffering from hydrocephalus, and many of those are children. The only treatment for hydrocephalus is brain surgery, often repeated again and again (I have had 25 brain surgeries in the past 20 years, 20 of those since 2013).

I have dedicated myself to doing everything I can to make sure that the generations ahead of me will have better treatment options, by being very open with my journey the past several years. The response has been overwhelming, to say the least. My personal website, www.stayinthearena.com has been viewed well over 200,000 times in the past couple of years.

Please join me in this battle, in whatever way you can.

  • I would love to have you join me in person for this event. The walk is an easy 2K walk, and it's incredible just to be there and support other families. The Portland Fire Department puts on a BBQ lunch.
  • If you make a donation or fundraise for the walk, there is no cost for the BBQ. Otherwise, we suggest a $10 donation for adults and $5 for children for the BBQ. (there is no registration fee for the walk) If you are going to join us for food, you MUST register for the walk - so we can get accurate numbers for food. Thank you!!

If you can, we would be so grateful for any donation you can make. The Hydrocephalus Association is supporting an overwhelming number of families, and are doing an incredible job.
Thank you so much for reading this, and considering any level of participation.
I appreciate your support.

Here's to the relentless pursuit of everything important,

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