As I approach the completion of my second
year as Board President of the OI Foundation, I can’t help but reflect on the
incredible experiences I have had in this role: I attended the annual OIF
Scientific Meeting, Investigator Meetings for the Brittle Bones Disorder
Consortium, National Health Council Conference, and OIF Regional Conferences in
Houston, Montreal, and Portland. I was reminded that OI knows no borders when
traveling to Oslo, Norway for the International OI Meeting and as the OIF began
working together with the Canadian OI Society to coordinate our efforts in
advancing research and providing information and resources to all individuals
with osteogenesis imperfecta.
This July, OI
community members will come together in Baltimore, MD for the OIF National
Conference, where resources and support are provided to all individuals in need
of answers. Whether you are just beginning to learn about OI types and
treatment options, or you are an adult with OI adjusting to new complications,
the OIF has the resources you need.
When I accepted the role of President at
the OIF National Conference in 2016, my Board of Directors and I made a plea to
our OI community to help in our fundraising efforts. 62% of the OI Foundation’s
annual budget comes from individual donations and events. Now I’m asking for
your help! Your membership helps fund research, provide medical information,
develop new resources, and increase public and professional awareness about OI.
Things seem to be heading in the right direction, thanks to everyone that has
supported us for the past 48 years. We hope that this support continues into
As President of the OIF Board, my promise
to each of you is that our Board and staff will continue our strong commitment
and efforts toward the funding of grants, education, awareness, and research.
Last year I was very proud to say that 78 cents out of every dollar raised by
the OIF goes back to our community! As a matter of fact, Charity Navigator has
rated the OI Foundation a 91.36 out of 100 (with four out of four stars).
The OI Foundation owes
its success to its loyal, supportive members; the organization’s future depends
I hope that you will consider joining the OIF or renewing your membership. Your
membership enables us to continue offering the exemplary services we provide to
all individuals affected by OI. Together, we truly do have an Unbreakable
Ken W. Gudek, Sr.
OI Foundation Board President