Proposed Senate Tax Plan & the Direct Impact on Our Community


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Please Oppose the Proposed Tax Plan

Dear [Decision Maker],

I'm writing to you today to urge you to oppose the proposed tax legislation that will have a negative impact on those living with rare diseases like Duchenne Muscular Dystrophy and the millions living with complex medical conditions. The current draft will not only hurt the momentum seen in drug development for rare conditions but will directly impact family expenses and overall quality of life. 

The most alarming issues within the plan include:

- Partial Repeal of the Orphan Drug Tax Credit (ODTC):
The Orphan Drug Tax Credit was established in the 1983 Orphan Drug Act and has been a critical incentive in bringing industry into the rare disease space. The Senate proposal includes a complex tax credit formula that will essential create a 50% reduction in the tax incentives currently provided to companies who conduct clinical trials within rare diseases.

We also remain concerned about many provisions included in the House version that could negatively impact our communities. Such as,

-Elimination of Itemized Tax Deductions for Medical Expenses
The Tax Cuts and Jobs Act would not repeal any major part of Obamacare but it DOES ELIMINATE a critical deduction for people with high medical expenses. The proposed legislation repeals the itemized deduction for medical expenses. If passed, it will take effect next year.

-Eliminates Tax Deductions for Contributions to Medical Savings Accounts
The Tax Cuts and Jobs Act would also eliminate the deductibility of contributions to Archer medical savings accounts.
Repeals the Orphan Drug Tax Credit (ODTC)

These elements of this legislation are a direct hit on our Duchenne community and those with complex medical conditions. They will immediately impact the financial burden on personal households and threaten to slow drug development and innovation into treatments and cures for Duchenne.

Please oppose this plan so that my family and millions other don't suffer catastrophic consequences.

[Your Name]
[Your Address]
[City, State ZIP]
[Your Email]