Now that the House letter has closed. It is time to move onto the Senate.Please urge your Senators to sign the FY19 Duchenne funding letter which is now circulating.
Help ensure the agencies that impact Duchenne receive the funding they need to concentrate on the needs of our community!
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Sign the FY 19 Duchenne MD Appropriations Letter
Dear [Decision Maker],
Help End Duchenne Muscular Dystrophy - Please sign the FY 19 Duchenne MD Appropriations LetterSenate Deadline to Sign: April 10, 2018Sixteen years ago, the focus and funding for Duchenne research and care were nearly nonexistent. However, in 2001 Congress enacted the Muscular Dystrophy Community Assistance, Research and Education or MD-CARE Act, which dramatically transformed efforts to combat Duchenne and other forms of Muscular Dystrophy. As a result of this Act and subsequent amendments, federal commitments to research expanded, helping spur scientific breakthroughs to develop potential therapies. These commitments have also leveraged significant non-federal funding from academic institutions, industry and venture investors in a true public-private partnership model. In addition to research breakthroughs, the MD CARE Act has helped capture important epidemiological data, information that has helped standardize patient care.
Sincerely,[Your Name] [Your Address] [City, State ZIP][Your Email]