2022 Philadelphia Tri-State Area Walk for Sjögren's

All grey now!!!!!!
All grey now!!!!!!

Esta Jo

Seems I have 2 pages where donations are.  One is a team page and the other is a personal page.  So whichever you donate, it goes to the same place.  One day I will understand this new computer stuff.

You may or may not know that I have Sjogren’s Syndrome.  It is an autoimmune disease that has easily recognizable symptoms like dry mouth and dry eye. But other symptoms include joint and muscle pain, exhaustion, depression, acne, brain fog and many more in varying degrees of severity.  It is incurable but is treated by the infamous Hydroxychloroquine.  The only good thing about being diagnosed it that every one of my various illnesses fall under the umbrella of Sjogrens and I no longer feel like a hypochondriac.  

Sjogrens is a seriously under-diagnosed illness.  It is in same arthritis family as Scleroderma, Lupus, and Rheumatoid Arthritis.  Many people are diagnosed with these diseases concurrent with Sjogrens.  Due to the efforts of the Foundation and advancements in medicine, the diagnosis time is down from 13 years, to 7 years, to 3 years now.  It took my doctors about 25 years to diagnose me finally in 2014.

The Sjogrens Foundation supports awareness campaigns, medical research and patient support.  I lead a “local” support group by zoom that includes participants for all over the country.  

The Sjogrens Walk was usually held at the Philadelphia Zoo.  For the past 2 years and again this year the walk will be virtual.  That makes raising funds more difficult.

I hope you will consider giving a small donation today as part of my “team”

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