FREQUENTLY ASKED QUESTIONS

How do I join the Opening Ceremonies?

First please register. As we get closer to walk day, we will send all registrants instructions on how to join the Virtual Opening Ceremonies, which will begin at 10:00 a.m.

Do I have to register in order to participate in the Opening Ceremonies?
You do not have to be registered to participate in the Opening Ceremonies or the Walk itself. The Foundation encourages registration as a way to make the event more enjoyable for our Walkers but it is not required.

How much money do I need to raise to participate?
Registration for the Walk for Sjögren's is free, but there is no limit to what you can raise! The funds you raise will help support the Sjögren's Foundation’s mission of research, education and awareness. All attendees who register and raise or donate $40 will earn a Walk T-Shirt.

What if a donor wants a receipt for their donation?
If a donation is made online through your fundraising page, the donor will automatically receive a receipt. If you receive cash or checks, you can provide the Foundation with the name and address of the donor and we can mail the donor a receipt.

I have collected funds in the form of cash and checks, can I add them to my total on my fundraising webpage? 
Yes, just list these donations as offline donations and then mail the donations to the Foundation.

What is the money we raise used for?
The Sjögren's Foundation is the only national non-profit focused on increasing research, education and awareness for Sjögren's. Funds raised through the Walk for Sjögren's help fund research to encourage and support new therapeutics and diagnostics; further Sjögren's research initiatives; provide support and education to patients and their families; increase public and professional awareness of Sjögren's; and allow the Foundation to serve as the lead organization for Sjögren’s worldwide.

How long is the Walk for Sjögren's?
The Walk is as long as you would like it to be. It is a non-competitive celebratory event, typically 1 mile. Walking is not required, participants may walk at their individual comfort level. 

I don’t have Sjögren's, can I still participate?
Absolutely! Participants may include family, friends, co–workers, etc. All are welcome! We encourage everyone to attend the virtual event to cheer on fellow participants and/or raise funds.

Can others join me on the walk?

Yes, if they are with you, just follow current guidelines for safely walking together. Or they can join you virtually by walking from wherever they are. Out-of-towners can even join in!

Are there fundraising incentive prizes?
Yes, there are incentive prizes, as listed on the fundraising prizes page.

When will I receive my T-shirt and participant prizes?
Walkers who paid the registration fee of $40 or who registered and raised/donated $40 BEFORE May 18th will receive their Walk T-Shirts in time to wear on event day. (Otherwise you can wear a previous year’s walk shirt or make your own sign to pin to your shirt to Sjö support.) You will receive the rest of the incentive prizes that you have earned by mail after the Walk.

Where do I send the money I collected?

Please mail your funds collected offline to the Sjögren's Foundation. When mailing, please be sure to include your name, and contact information clearly on the materials. (You can also enter them on your participant page as offline donations, if you would like.)

Address for mailing:

Sjögren's Foundation - Denver Area Walk for Sjögren's
10701 Parkridge Blvd., Suite 170
Reston, VA 20191

 

If you have any additional questions, please contact the Foundation at (301) 530-4420 or walk@sjogrens.org.

National Sponsor

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